Perks of having atypical kids

preemie tee shirt

Click this image to purchase a tee from EliandRyn.

My first kid came 16 weeks early.  I see your math-wheels turning, converting that into months.  Yep.  He spent 3 months in intensive care and 3 weeks in a transitional hospital.  He was about 6 months old when he first brought his hands to midline (the center of his body in front) and 8 months old when he passed a toy from one hand to the other.  Two important firsts for which we had been watching and waiting.

On each occasion we photographed the event, reported it to our parents, physical therapist, occupational therapist, developmental followup personnel, pediatric neurologist, and family friends.  And each time one friend or another said “I didn’t even know that was a milestone.  I wonder what else I have missed.”

A friend on a parallel path called to tell me when her daughter reached for a tree branch outside, around age 8, and how she and her partner wept with the joy of it.  That takes vision, planning, desire, cognition, hand-eye-mind coordination!  States away, I wept into my phone too.  We rejoiced together.

I survived tee

Click this image to order a shirt from CreativeandCatchy.

The highs and lows of raising atypical kids are extremely low … and extremely high.  There are ways that parents of “typical” kids don’t get to experience the intense joy, love, and gratitude that we get to feel.  Initial diagnoses, possible outcomes, and planning courses of treatment are shocking.  Keeping track of appointments, services, medications, medical histories, and both short- and long-term goals are hard, and parenting atypical kids is hard, even grueling, with spurts of hopelessness and a constant quiet drone of worry –like that annoying neighbor who is always mowing his lawn.

In most cases, that’s not ALL it is though.  While the bulk of parents quietly check off those big visible milestones — tick, tick tick — we warriormamas study that list and all the wee steps leading up to each developmental check mark. Waiting. Watching. Hoping.  When it happens, it is huge.  A prayer answered, a celebration inside and out.  Hearts a-burstin’, eyes a-dancin’, skipping, cartwheels, screaming, and jumping for joy.  Jealous?  Our victories aren’t celebrated as points on the way to college, tech school, moving out, or adulthood, they are self-contained victories, and the joy we feel is so enormous, it can almost break us.

A facebook friend recently shared a report on which colleges graduate those students who end up making the biggest salaries, disappointed that his kid’s college wasn’t on the list.  As a parent, that is so far from my frame of reference, I can’t believe that we are both talking about parenting.  As I type this I am reveling in one good day — how it sounded smelled and tasted — and I know that in some deep way, I am the lucky one.

Come on over to Facebook and tell me what your hardest joy in parenting has turned out to be.


Slumber Party… with a helicopter mom

Slumber Part clip art

Click this image to purchase this darling clip art from 1EverythingNice.

Thing Two had a slumber party!

Her friend came for dinner, and when I asked if she’d eat spaghetti and meatballs, salad, garlic bread, she responded “I don’t care what I eat.”  Heaven!

The sleepover was a cliche, with every element you might imagine when 8-year-olds have slumber parties.

There was giggling, squealing, whispering, stuffed animals, nail polish, and puking.


Slumber party art

Click this image to purchase it from Jessica Stasie.

Yes.  I was holding a long blonde ponytail watching a colorful work of art develop.

And panicking.

Someone else’s kid was at my house!  Sick!

Running mate was out with our car, and our guest was starting to cry.

I couldn’t take her home!

Luckily we had ginger ale.  I called her mom. “Oh, yeah, this is her first sleepover without her sister.  And she’s overtired.  Just send her to bed.”

Oh huzzah. Reaching out is a crucial skill for helicopter parents.  Whether it’s a friend, a coach, another parent, the pediatrician, the insurance company health hotline, poison control…if you have a finely tuned panic reflex, brainstorm an outreach list right now and put a post-it note on the calendar or fridge.  You will thank me in the middle of the night one night!  🙂

If  you are struggling with parenting stress, find me on Facebook, Pinterest, or reach out for help.

I am the best helicopter parent ever!

helicopter parent

Best parent ever! – Funnermother.comMy kid is a genius, handsome, funny, kind, creative.  I am sure of it!  I turn away candy, toy guns, commercial tv, video games.My kid is a genius, handsome, funny, kind, creative.  I am sure of it!  I turn away candy, toy guns, commercial tv, video games.

My kid is a genius, handsome, funny, kind, creative.  I am sure of it!  I turn away candy, toy guns, commercial tv, video games.

And this world will not hurt him. Because I am RIGHT THERE.  All the time.  Aren’t you?

Making sure nobody steals his toys, cuts in line in front of him at the playground, hurts his feelings?  Right?  Protect and serve, that’s us, right?

In the hospital with pneumonia, I chide his doctors: please wash hands in front of me.   One says, “that vigilance has gotten him this far.” Awesome.



Best helicopter parent ever! –

Years later, I overhear the neighbor kid “Aw mom, I don’t want to play with him, he doesn’t know how to play my video games.”  Oops.  Am I hovering too much?

I answer the phone at the front desk of the academic library: “Yes, um, I see that you are hiring a curator?  My daughter’s background is in x, y, and z.  Should she apply?  How many applicants have you had so far?”

Wait, what?  Oh no. That’s wrong.


helicopter parent

Best helicopter parent ever! –

Let me reflect a moment.  He’s ten.  Our pediatrician has been coaxing me to prioritize his social life, spend time with his friends, give him some space.  It clicked.

That’s where I’m headed, isn’t it?  Finding him work. Going on job interviews with him.

In cultural analysis we use the term “overdetermined” to describe how several different factors come together to create a very particular situation.  A kind of cultural “perfect storm.”

I learned to parent in the Neonatal Intensive Care Unit – the first of three pressures leading up to my “parenting trifecta.”


Best helicopter parent ever! –

Nope, parenting did not feel natural or intuitive to me.  In the moment, I could not figure out why.  In retrospect, how could it possibly?  Thing 1 came three days on the right side of viability; three days earlier and they would not have tried to save him.  Four years later, that doctor praised my vigilance.   Six years later, I am at a crossroad.  It felt so good to grow up, move away, forge my life.  He should be able to do that, too, and I need to travel a different path to allow him to self-actualize.  My next blog posts will cover a) my own 1970s childhood and late maternal age and 2) parenting in a culture of fear as other overdetermining factors.

Do struggle with hovering?  I’d love to know your thoughts and strategies in the comments below.

Read more about “helicopter parents” here:

US News & World Report